Tuesday, January 17, 2017

Help Us Publish "Hannah’s Big Heart" 

My name is Larry Spain, and my eight year old daughter (Hannah) was diagnosed with Arterial Septal Defect (a hole in her heart) in November 2016 and had open heart surgery in December 2016. Now she and I are co-writing a children’s book about Hannah’s open heart surgery experience. The book is titled “Hannah’s Big Heart” for two reasons; first because Hannah is a very loving and selfless person, and secondly because Hannah’s heart is enlarged due ASD.

Why Write The Book?
The idea to write the book came about when Hannah was first diagnosed. I searched for a children’s book to help me explain the surgery to her, but there are not any children’s books on the market that covers open heart surgery. So I went ahead and I research Atrial Septal Defects and open heart surgery, hospital stays, etc. and then I broke it down into easy to understand terms, and began explaining to Hannah what I thought her surgery would be like. However the information that I found was more like misinformation and it was difficult for me to help Hannah prepare for her open heart surgery. During that period of time I had other parents reach out to me seeking advice on how to best prep their children for heart surgery. So after Hannah’s surgery was completed she and I began writing “Hannah’s Big Heart” to help other children who are facing heart surgery. “Hannah’s Big Heart” will offer a very (age appropriate) descriptive account of what a child (and their parents) can expect, and is written to help reduce the anxiety and stress that a surgical procedure can cause.

Why Us?
The reason why I feel that Hannah and I are qualified to write this book is because we lived it and experienced it first hand, and because we are very passionate about sharing Hannah’s story and the importance of early CHD detection. “Hannah’s Big Heart” is written by Hannah herself, as her father and the book’s co-writer I am simply putting her words on paper. I have conducted several series of interview sessions asking Hannah about her open heart surgery experience. These questions included; questions about the doctor’s visits, the tests leading up to her surgery, the surgery itself, and her recovery phase. Hannah answered those questions in great detail and I wrote her words down on paper. Hannah is working with a wonderful local art teacher Nancy Maxwell who is helping Hannah illustrate Hannah’s Big Heart. Hannah has established the cover, the back of the book, as well as multiple images for several of the pages. Even though the story is by Hannah, I feel qualified to put the words on paper for her. I have studied creative writing in the past and have successfully completed both screenplays and short stories.

The Book Details:
Hannah’s Big Heart will most likely be self-published. The book will be 30 pages long, it will have between 1,500 and 2,000 words, and it will be written for children from ages 5 to 9 years old. The book will measure 8.5” (vertical) by 8.5” (horizontal). To date we have the book about half way completed and we hope to have it self-published by the end of February.    


Rewards :
Donations of $100.00 or more will receive an autographed copy of our book with the donor's name printed in the book (Financial Contributor). 

To Help Get "Hannah's Big Heart" Published 
Please Go To: https://www.gofundme.com/hannahspain







We are also seeking sponsors to help us self-publish and distribute our book.

As a sponsor your corporation or organization will have the option of have its name and logo; in our printed book, in our eBook, on our website, on our social media sites, as well as being recognition at book signings, public functions and (television and radio) media broadcasting. The best part is we will be distributing the first 10,000 copies of our book free of charge to public libraries, public and private schools, and will also be distributed by heart organizations, foundations, and advocates. This means that each of these books will be read by multiple people, assuring that all of our sponsors receive direct marketing exposure to tens of thousands of prospective clients, patients, or supporter.

The name of our book is “Hannah’s Big Heart”. We named it this for two reasons; first because Hannah is a very loving and selfless person with a big loving heart, and secondly because Hannah’s heart is enlarged due ASD. Our book will offer an age appropriate descriptive account of what a child (and their parents) can expect going into surgery, and is written to help reduce the anxiety and stress that a surgical procedure can cause.

$10,000.000 Sponsorship:
1)            Book signing event at their place of business.
2)            A descriptive paragraph in our printed book profiling their corporation or organization.
3)            A descriptive paragraph in our eBook profiling their corporation or organization.
4)            A descriptive paragraph profiling their corporation or organization (including name, logo, and a link) on our website.
5)            Their name, logo and a link on our social media sites (with name & logo) and a link on our social media sites.
6)            Public recognition at book signings, public functions and (television and radio) media broadcasting.

$5,000.00 Sponsorship:
1)            Their corporation or organization’s name & logo printed on the sponsorship page of our book.
2)            A descriptive paragraph in our eBook profiling their corporation or organization.
3)            Recognition on our social media sites (Facebook, Twitter, and blog).
4)            Their name, logo and a link on our website.

$2,500.00 Sponsorship:
1)            Their corporation or organization’s name & logo printed in (the sponsorship page of) our book.
2)            Their corporation or organization’s name & logo in our eBook.
3)            Their name, logo and a link on our website.

NOTE: At the bottom of each page readers will be directed to view the sponsorship page, “This book was made possible by our sponsors – see page 29.”
The Book Details: Hannah’s Big Heart will most likely be self-published. The book will be 30 pages long, it will have between 1,500 and 2,000 words, and it will be written for children from ages 5 to 9 years old. 






Sunday, January 1, 2017

Hannah's Big Heart


Please Help Support "Hannah’s Big Heart"

Hannah’s Big Heart is a children’s picture book about an eight year old girl who has open heart surgery. My eight year old daughter (Hannah) and I are co-writing “Hannah’s Big Heart” to help other children who are facing heart surgery. Hannah wants to share her open heart surgery experiences in a way that will help other children feel more comfortable by having a better understanding of what to expect on the day of their surgery. The book is named “Hannah’s Big Heart” for two reasons 1) because Hannah (Sweet Pea) Spain is a very selfless and compassionate person and 2) because Hannah’s congenital heart defect (Atrial Septal Defect) caused her heart to enlarge. Hannah and I have become amateur heart defect advocates. We are dedicated to educating parents of the dangers of congenital heart defects being misdiagnosed or over-looked by pediatricians as Hannah’s condition was misdiagnosed. For years we were told that Hannah only had a small heart arrhythmia (that would most likely repair itself, in time) and that was not the case. During Hannah eight year old checkup (with a new pediatrician) we discovered that Hannah actually had an Atrial Septal Defect and it turned out that the hole in Hannah’s Heart was quite large and we were told by a pediatric cardiologist that if Hannah’s Atrial Septal Defect was not repaired while she was young it would cause permanent and irreversible heart damage. After Hannah’s open heart surgery the pediatric cardiovascular surgeon told us that by having her open heart surgery when we did we increase Hannah life expectancy by thirty years. On December 22 2016 Hannah had open heart surgery to repair an Atrial Septal Defect, the surgery went well and she was released from the hospital on Christmas day. The surgery took about three and a half hours and Hannah was on a heart-lung bypass machine for twenty seven minutes. Her sternum was wired and she received three layers of stitches to close the incision. She had a chest tube (to drain the blood around her heart) and three IVs. I would like to thank everyone who prayed for Hannah, because God guided the surgeon’s hands and blessed Hannah with a proficient procedure. Her pain was well managed and she is recovering very well. I have nothing but good things to say about the hospital, the surgeon and the nursing staff at Riley Hospital for Children (Indianapolis). I was truly impressed with the medical professionalism and the compassionate care that they provided. I would also like to thank everyone who cared enough to help us with their financial gifts. Because of your generosity I have been about to get a handle on my bills and was able to provide Hannah with some Christmas gifts. Hannah is a beautiful little girl (both inside and out). She is a straight-A student, and she is one of the most caring and selfless children in the world. She loves to sing, dance, and practice gymnastics. She enjoys reading and watching (mostly Barbie and princesses themed) movies, and is a HUGE fan of Taylor Swift. Hannah has a younger sister, two older brothers and a mother and father who all love her very much. To learn more about Hannah and her family visit: Hannah's Blog or her Facebook Care Page. Please help Hannah achieve her dream of publishing her book “Hannah’s Big Heart”. The book will be self-published so that we can maintain the rights, and so that we can publish and distribute the book immediately. It is our goal to publish and begin distributing Hannah’s Big Heart by the end of February. After the initial phase of production the book will be available on Amazon, in bookstores, and hospital gift shops. Our main expenses are for the illustration, editing, the actual printing and the marketing of the book. We’ve decided that ten percent (10%) of all book sales of Hannah’s Big Heart will go to a special fund to help low income families with children who have heart defects or heart diseases and require surgery. Thank you for taking the time to read about Hannah and her upcoming book “Hannah’s Big Heart.

Please help us get the word out about our book by sharing our videos and our links.

G0-Fund-Me: https://www.gofundme.com/hannahspain
Hannah's Big Heart Facebook Page
Hannah’s Twitter Page
Hannah's Big Heart Blog
Gmail: hannahsbigheart@gmail.com